Clinical Trials

Thank you all for your generous donations – Stroke Recovery Trial Fund has now made 2 donations totalling of $75,000 to Griffith University’s School of Medical Science to enable to start of the Perispinal Etanercept clinical trial for Stroke which commenced in November 2017.

The mission of the Stroke Recovery Trial Fund to provide education about stroke and brain injury, treatment and research,  we are planning to support research into new treatments for brain inflammation  as a result of Stroke or Brain Injury (Traumatic and Acquired).

The first of these clinical trials is the Griffith University School of Medical Science Perispinal Etanercept Clinical Trial. Although we are helping fund this clinical trial, the Stroke Recovery Trial Fund LTD is an independent charity and is not in any way involved in the selection of people who wish to apply to participate in this Clinical Trial .

To see the inclusion criteria for potential participants – please go to:  https://www2.griffith.edu.au/menzies-health-institute-queensland/our-research/clinical-trials/stroke or email : stroke-interest@griffith.edu.au


8 Comments

Monique Taylor

May 5, 2015 at 1:57 pm

I had a stroke at the age of 39 following a water skiing accident where I ruptered my left carotid artery. I am interested in taking part in the trial.

    Webmaster1

    May 23, 2015 at 8:55 pm

    I am so sorry to read about your situation after your accident.
    The SRFT are an independent charity and therefore not directly involved in selecting participants for the Griffith University Clinical Trail. The clinical trail is for stroke patients using Perispinal Etanercept and will be the first of its kind anywhere in the world. There is more detail about the inclusion criteria for prospective participants on their website where you will also find their contact details: http://www.griffith.edu.au/menzies-stroke-trial
    Please also have a look at the Perispinal Etanercept Action Group website : http://www.pseag.com for more details about how this treatment works, published research, success stories following treatment and were it is available in the USA.

    If you have any other questions – please email us at strokeRTF@gmail.com . I wish you all the best and hope you are able to get some improvement from this wonderful treatment. Regards SRTF team

Tracey Gibb

May 22, 2015 at 7:10 am

Hiya guy’s when I was 19yrs old (now 41yrs young) I had an abscess to the BRAINSTEM PONS which caused a stroke .The abscess was due to bacterial menagitis .
When I watched your story on the Sunday Night program on the TV ,I was totally blown away .
I lost everything , IF I got accepted for the trial ,I would be so happy with any improvement .

regards Tracey Gibb

    Webmaster1

    May 23, 2015 at 8:07 pm

    I am sorry to read about your situation – it is very sad. The treatment that the Sunday Night program “A Miracle Cure?” mentions, is called Perispinal Etanercept. Please have a look at the Perispinal Etanercept Action Group website : http://www.pseag.com for more details about how this treatment works, published research, success stories following treatment and where it is available in the USA.
    The Griffith University Clinical Trail is for stroke patients using Perispinal Etanercept. This clinical Trial will be the first of its kind anywhere in the world. There is more detail about the inclusion criteria for prospective participants on their website where you will also find their contact details: http://www.griffith.edu.au/menzies-stroke-trial
    If you have any other questions – please email us at strokertf@gmail.com . I wish you all the best and hope you are able to get some improvement from this wonderful treatment. Regards SRTF team

Beth

June 21, 2016 at 2:46 pm

It’s truly great news to hear that funding is being applied to this research in AUSTRALASIA :). I’m a NZ stroke survivor who “looks normal” yet my life has unutterably changed since my right parietal lobe haemorrahgic stroke in early 2012. After active rehab ceased, ‘Sensory neglect’ still occurs to some extent, and while I can overcome much of that by actively ‘cognitizing’ what I want my body to do instead of just expecting it to occur naturally (so that I no longer carefully place my foot in the car door & jam it), my keyboarding skills are utter cr** requiring heaps of editing that’s mentally draining.
I have neuro-fatigue such that I really can’t work now (I tried to work full-time for 9 months – after my employer insisted on that or nothing, but I ‘crashed’ trying). Part-time work in my profession has been extremely difficult to find so I am experiencing poverty.
I know several people who have fund-raised and gone to the USA to participate in Etanercept treatment there, but the cost is so prohibitive that many whose lives are severely affected (hemiplegia, severe aphasia etc) and who could potentially benefit greatly simply can’t try this. So I hope that this Griffith trial will lead to the possibility of treatment for many more Australasians, when conventional rehab options have failed. Thanks!

    Webmaster1

    June 22, 2016 at 2:22 pm

    Thank you so much for your words of encouragement Beth. I am sorry to read about your stroke and the struggles that you are having with day to day life. Sadly your experience is typical of those experiencing stroke and this is why we are working so hard to get the clinical trial fully funded so that we can get Perispinal Etanercept available in throughout the world.

niversity for the perispinal Etenercept trial

August 23, 2016 at 12:33 am

Hello.
My name is Judy.
I have already put my name down with Griffith University for the Perispinal Etenercept trial, as I had a stroke in March 2014 and have lost the use of my left arm and trouble walking without an AFO or boot on my leg, could you tell me at all if the first lot of stroke survivors have been chosen for the trial and if so when will the trial be commencing again and if not when we will be contacted to go ahead with the trial.
Kind regards.
Judy.

Leigh Aubrey

November 12, 2017 at 9:23 pm

I had an AVM followed by a stroke two years ago 4/1015
I’m interested in taking part in trail and my daughter sent an email to you about 12 months ago when to the trial was first in the making.

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